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Some Direction for the Newly Diagnosed – ParkinsonsDisease.net
Some Direction for the Newly Diagnosed
Karl Robb- When one is blindsided with a diagnosis of Parkinson’s disease, it is so easy to feel shocked, overwhelmed, in denial, numb, or a combination of them all. For me, it took me days to make any sense of the diagnosis. While I was relieved that my Parkinson’s-like symptoms were not due to a brain tumor, as I had predicted (with my very limited and non-existent medical training), I still remember the fright of hearing, “You have been diagnosed with Parkinson’s disease.” Before I had a better understanding of Parkinson’s, I used to think that my symptoms began at the age… READ MORE
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Parkinson’s Disease—Going Beyond the Tremor
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Spotlight: Traveling with PD
Editorial Team- Whether you’re considering a long vacation, short weekend getaway, or just going to the store, traveling may seem like it’s out of the question for people with Parkinson’s disease. With some preparation and advanced planning, travel can still be enjoyable! For the month of July, we’ll be discussing travel tips when living with PD. Have tips and suggestions of your own? Get involved! Visit our forum to post your travel advice, submit your travel stories, or tweet to us below! Join the Conversation Are you a PD patient with tips to share about traveling? Weigh in on the discussion! Share… READ MORE
Plan Ahead: Tips for Traveling with Parkinson’s
Editorial Team- Before anyone takes a trip, even if it’s a spontaneous one, there is planning to be done. If you or a loved one has Parkinson’s disease (PD), there are even more challenges and possibilities to plan for. However, traveling with Parkinson’s can be made easier and safer with proper planning, and we’ve gathered some planning tips to get you started. Make a list. Before you start packing, create a checklist of everything you will need, including clothes, medications, toiletries, assistive devices, and IDs or passports. Know before you go. Research how to get from point A to point B, like… READ MORE
Common Travel Challenges for People with Parkinson’s
Editorial Team- Traveling brings up a host of challenges for anyone, but for people living with Parkinson’s disease (PD), traveling can be extra tricky as the changes to motor functioning as well as symptoms like pain, trouble sleeping, and cognitive changes make things more difficult. As you plan for travel, it can be helpful to understand common travel challenges that people with PD face. Extra time to get settled PD causes a slowness of movement, and it can also make starting movement difficult and result in episodes of freezing. Many modes of transportation, including airlines, trains, and buses, depend on a strict… READ MORE
Travel Tips For PD Patients
Karl Robb- I love to travel! Exploring new cities, discovering unique architecture, historic sites, bucolic power spots and new restaurants are adventures that l really treasure. Doing the touristy stuff can be very enjoyable, but going where the locals go can be even more fun and insightful. When you throw the unpredictability of your symptoms and Parkinson’s with the stress of travel, predicting medicine efficacy can be difficult. So much is up in the air: rushing through security, time changes, crowds, traffic, long walks, changes in routine are but a few of the factors that have major impact on getting to… READ MORE
Dear Ms. Parkinson’s
Allison Smith- Dear Ms. Parkinson’s, You first came into my life on March 17th, 2010. The day that I heard my neurologist say, “You have Parkinson’s disease” was a day that I will always remember. It was a surprise….not a good one, like winning a basket full of puppy dogs or getting a lifetime supply of True Religion Jeans. It was more along the lines of being told you have a debilitating neurological disease that usually impacts people in their 60’s. But just like I have done in the past when faced with a challenge, I embraced you. The stranglehold In the… READ MORE
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Featured story:
Living with Parkinson’s for over Thirty Years!
My name is Karl Robb. I have been blogging on Parkinson’s disease for over 10 years on my site, asoftvoice.com. I have guest blogged for numerous other Parkinson’s sites, lectured and written a book and co-authored a workbook with my wife, best friend, and care partner, Angela Robb. I was diagnosed with Parkinson’s when I was 23, but I was showing symptoms by age 17 (I am now close to 51 years old). It took me at least 9 doctors and 6 years for me to receive the diagnosis and the start of medical treatment to improve… READ MORE
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